December 5th, 2016; A Dreaded Day-More Lessons Learned

A western Norway fjord; Provided by Arnold Dalene.

I always knew the day had to come when the therapy I had been given for the last ten years inhibiting cancer cell growth would stop working and my PSA would start increasing despite the treatments. I had been living my life in four month increments of time between PSA tests. Now on December 5th, I finally saw the PSA rising uncontrolled. My local urologist called it “a bad day”, gave me a hug, kissed my wife on the cheek and in a “dismissal speech” said I’d have maybe 2-3 good years left before the painful and eventually fatal effects of advanced prostate cancer would manifest themselves. Meanwhile my oncologist told me I could maybe get ten years “if I hit the jackpot” in terms of additional therapies [e.g. enzalutamide (Xtandi® and abiraterone (Zytiga®] now available to me as an asymptomatic but metastatic patient. These drugs were not available as long I did not have clinical metastases. (I now see a medical need for the development of new therapeutic agents for prostate cancer patients like me who are asymptomatic yet metastatic.)

For several days, my mind was numb. I now could see an end-of-life coming into view. Even my personal relationship with God and Jesus seemed light years away through a combination of fear of dying, anger at therapeutic failure and extreme anxiety of near-future events. In my daily devotionals, I pleaded with God to allow me to hear something positive from Him now even though I knew He had spoken to my heart and mind many times in the past. An answer came from the Old Testament prophetic book of Micah 6:3-5 where God says to His people (and to me) “what have I done to you and how have I wearied you?” I quickly answered “You allowed the therapy that had worked for so long to fail.” Then He reminded me of so many instances in the past where He had delivered me from near-fatal accidents and illnesses just as He reminded His people (Israel) in verses 4-5 of the times He delivered them e.g. by parting the Red Sea among others. Then in verse 8, God reminded me to simply continue to “walk humbly with my God.” In addition, in the book of Hosea, God tells Israel (and me) “what shall I do with you”, your faith is like dew on morning grass which evaporates as soon as the hot sun hits it. Also as Jesus told His disciples when the storm arose nearly overwhelming them in their boat followed by His calming of the sea, “why are you so anxious, have you so little faith?”

While in this state of despair, I came upon a clinical trial of a new PET/CT scan imaging agent under development at Johns Hopkins designed to identify and localize tiny pockets of metastatic cancer sites. Upon contacting them, I was informed overnight that I would be an ideal candidate for the scan which I eventually received on December 12th in Baltimore. While my physicians and I had hoped the scan would find nothing, or perhaps one metastatic site which could be treated, the scan revealed three very small sites of cancer in three different lymph nodes which did not lend themselves to remedial treatment. In my disappointment however, I remembered that 13  years earlier I had a CT scan (Prostascint) at Hopkins which revealed the same three sites and which had not grown on size over the thirteen years that I was under hormonal therapy. I and my physicians took some encouragement in this comparison. But now of course, that limitation of starving the cells and controlling their growth is lifted.

So where does this leave me and perhaps you the reader if you can relate to my condition? Medically, I am in a watch-and-wait-and re-scan mode with several potential treatments available including immunotherapies like Provenge and soon Prostavac if and when needed. I am grateful for a team of cutting-edge and communicative physicians at Johns Hopkins (Maryland) and Moffitt Cancer Center in Tampa. In addition, I was honored to be asked to give a talk along with my Hopkins urologist at a conference entitled  “Medicine and Religion” in March, 2017. I intend to describe my personal spiritual and medical experiences including “lessons learned” as described on this website over the years.

I have been reminded over and over to remember what God has told me in the past predominantly through His Word, the Bible and so directly and unexpectedly several times. Jesus has said He would take care of my body as long as I continue the “mission” He has given me of allowing Him to be seen through my cancer.  (See the April 30th, 2015 link).

God may also want to change me from the inside rather than my circumstances. When we wait in silence before God, it gives Him the opportunity to communicate His thoughts to us. In Psalm 62:1,5 David writes, “my soul waits in silence for God only; from Him is my salvation…..My soul, wait in silence for God only, for my hope is from Him.” Verses 11-12 state that “power and lovingkindness belong to God.” It may be His will that I keep my prostate cancer but God will deliver me now in this life as well as in my eternal life which I possess as a free gift through personal faith in Christ.

I am also learning how to combat the negative cloud of anxiety which seems to overwhelm me at times of bad news. In Romans 12:1-2 the apostle Paul writes, “I urge you….to present your bodies a living and holy sacrifice, acceptable to God, which is your spiritual service of worship; and do not be conformed to this world, but be transformed by the renewing of your mind, that you may prove what the will of God is, that which is good and acceptable and perfect.” How do I “renew my mind”? In Christ, I am to become a “living sacrifice”.  I need to say to Him as my Savior and Lord, “I trust You. Whatever You want me to do I am willing.” Then He “transforms” me by renewing my mind to focus on things that please God and are in my best interest as well. God will never call on us to do something for which He has not already equipped us.

 God has also told me (through my wife) that what He can accomplish in and through me is directly proportional to how much I depend upon Him.

And so the journey continues. More medical and spiritual posts to come. If you cannot relate to having a personal, communicative relationship with God through His Son, Jesus Christ, see this link.

 

 

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One Response to December 5th, 2016; A Dreaded Day-More Lessons Learned

  1. Jerry Miller says:

    I read this blog and see myself in so many ways. I was diagnosed 3 1/2 years ago at age 54 with metastatic prostate cancer – I presented with a PSA of 1460. After my first Lupron shot, my PSA surged to 2,220. Sixteen months prior my PSA was 1.0. My PSA dropped over the first year to 0.02 and I have continued as a poster child in my clinical trial. For the past four appointments, my numbers have doubled. On January 19, my PSA level was at 0.32. When my PSA reaches 2.0, I will progress out of my clinical trail. I spoke at length to my oncologist about options when I progress past hormone treatment. I read in this blog many of the options that my oncologist and I spoke about. I appreciate these blogs and find inspiration and information. I try and pass both along to others going on this journey. My oncologist asked if I was a person of faith. When I said “yes”, he told me about God and Prostate. I’m thankful.

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